Japanese Parent Group to Host International Angelman Syndrome Conference in Kyoto
Key facts
- Japanese Parent Group to Host International Angelman Syndrome Conference in Kyoto
- Angel no Kai, a Japanese parent support group for families of children with Angelman syndrome, will host the 9th International Academic Conference of the Angelman Syndrome Alliance (ASA) in Kyoto in September 2026, bringing together researchers, clinicians, and families from around the world.
- Source: PR Times
- Date: June 13, 2026
Direct answer
Angel no Kai, a Japanese parent support group for families of children with Angelman syndrome, will host the 9th International Academic Conference of the Angelman Syndrome Alliance (ASA) in Kyoto in September 2026, bringing together researchers, clinicians, and families from around the world.
- Citation
- Japanese Parent Group to Host International Angelman Syndrome Conference in Kyoto (June 13, 2026), PR Times
- Source
- PR Times
- Date
- June 13, 2026
Angel no Kai, a Japanese parent support group for families of children with Angelman syndrome, will host the 9th International Academic Conference of the Angelman Syndrome Alliance (ASA) in Kyoto in September 2026, bringing together researchers, clinicians, and families from around the world.
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- 📰 Published: June 13, 2026 at 05:32
- 🔍 Collected: June 12, 2026 at 20:48
- 🤖 AI Analyzed: June 13, 2026 at 09:42 (12h 54m after Collected)
Angel no Kai is a Japanese parent support group for families of children with Angelman syndrome, a rare chromosomal disorder.
The organization is pleased to announce that it will host the international academic conference of the Angelman Syndrome Alliance (ASA), a global research consortium, in Kyoto this September.
We kindly invite media representatives to cover this significant event, detailed as follows.
There is no greater joy than raising broader public awareness of Angelman syndrome and the challenges faced by affected families through media coverage.
【Conference Overview】
Conference Name: 9th Angelman Syndrome Alliance Academic Conference in Kyoto
Dates: September 21 (Mon, Holiday) – 22 (Tue, Holiday), 2026
Organizer: Angel no Kai (Japanese Parent Association for Children with Angelman Syndrome; see below)
Venue: Miyako Messe Kyoto City Exhibition Hall (9-1 Okazaki Shogoin-cho, Sakyo-ku, Kyoto City, Kyoto Prefecture)
ASA Member Countries (including associate members): Austria, Belgium, France, Germany, Ireland, Israel, Italy, Japan, the Netherlands, Portugal, Spain, the United Kingdom, Ukraine, Argentina, Hong Kong, Hungary, New Zealand, Czech Republic
【9th Angelman Syndrome Alliance Conference in Kyoto】Official Website
https://asconfe2026-kyoto.org/
【Background Information】
● What is Angelman Syndrome?
Angelman syndrome is a designated intractable disease affecting approximately 1 in 15,000 people. It is caused by a functional abnormality of the UBE3A gene on chromosome 15, resulting in severe intellectual and developmental disabilities, epilepsy, speech impairments, and a characteristic happy demeanor with frequent laughter. The condition affects neurological development and often involves motor and sleep disorders. Despite these challenges, individuals with Angelman syndrome are typically gentle and display frequent smiles.
● What is Angel no Kai?
Founded in April 1998, Angel no Kai aims to support the healthy growth and development of children with Angelman syndrome through information sharing, mutual support, and fellowship among parents. The organization currently has over 430 member families.
【Angel no Kai】Official Website
http://angel-no-kai.com
● What is the Angelman Syndrome Alliance (ASA)?
The Angelman Syndrome Alliance (ASA) is an international nonprofit organization that unites parent groups and support organizations worldwide to advance research funding, public awareness, and therapy development for Angelman syndrome. Japan's Angel no Kai is an active member, contributing to international conferences and collaborative research initiatives.
【ASA】Official Website
https://angelmanalliance.org
【Media Inquiries】
Masako Mizukawa, Public Relations Officer, Angel no Kai
TEL: 080-3476-4961 (Weekdays, 10:00–18:00)
Embargo on this press release: After 11:00 AM on Monday, June 15.
The organization is pleased to announce that it will host the international academic conference of the Angelman Syndrome Alliance (ASA), a global research consortium, in Kyoto this September.
We kindly invite media representatives to cover this significant event, detailed as follows.
There is no greater joy than raising broader public awareness of Angelman syndrome and the challenges faced by affected families through media coverage.
【Conference Overview】
Conference Name: 9th Angelman Syndrome Alliance Academic Conference in Kyoto
Dates: September 21 (Mon, Holiday) – 22 (Tue, Holiday), 2026
Organizer: Angel no Kai (Japanese Parent Association for Children with Angelman Syndrome; see below)
Venue: Miyako Messe Kyoto City Exhibition Hall (9-1 Okazaki Shogoin-cho, Sakyo-ku, Kyoto City, Kyoto Prefecture)
ASA Member Countries (including associate members): Austria, Belgium, France, Germany, Ireland, Israel, Italy, Japan, the Netherlands, Portugal, Spain, the United Kingdom, Ukraine, Argentina, Hong Kong, Hungary, New Zealand, Czech Republic
【9th Angelman Syndrome Alliance Conference in Kyoto】Official Website
https://asconfe2026-kyoto.org/
【Background Information】
● What is Angelman Syndrome?
Angelman syndrome is a designated intractable disease affecting approximately 1 in 15,000 people. It is caused by a functional abnormality of the UBE3A gene on chromosome 15, resulting in severe intellectual and developmental disabilities, epilepsy, speech impairments, and a characteristic happy demeanor with frequent laughter. The condition affects neurological development and often involves motor and sleep disorders. Despite these challenges, individuals with Angelman syndrome are typically gentle and display frequent smiles.
● What is Angel no Kai?
Founded in April 1998, Angel no Kai aims to support the healthy growth and development of children with Angelman syndrome through information sharing, mutual support, and fellowship among parents. The organization currently has over 430 member families.
【Angel no Kai】Official Website
http://angel-no-kai.com
● What is the Angelman Syndrome Alliance (ASA)?
The Angelman Syndrome Alliance (ASA) is an international nonprofit organization that unites parent groups and support organizations worldwide to advance research funding, public awareness, and therapy development for Angelman syndrome. Japan's Angel no Kai is an active member, contributing to international conferences and collaborative research initiatives.
【ASA】Official Website
https://angelmanalliance.org
【Media Inquiries】
Masako Mizukawa, Public Relations Officer, Angel no Kai
TEL: 080-3476-4961 (Weekdays, 10:00–18:00)
Embargo on this press release: After 11:00 AM on Monday, June 15.
FAQ
What is Angelman Syndrome?
A rare genetic disorder caused by UBE3A gene dysfunction on chromosome 15, leading to developmental delays, seizures, and frequent laughter.
When and where is the international conference?
September 21–22, 2026, at Miyako Messe Kyoto City Exhibition Hall, Japan.
Who is organizing the conference?
Angel no Kai, a Japanese parent group, in collaboration with the global ASA network.
How should media respond?
Embargo lifted June 15, 2026, 11:00 AM. Contact PR officer Masako Mizukawa.
What is the Angelman Syndrome Alliance (ASA)?
A global nonprofit uniting patient groups to advance research, awareness, and therapies.