"RD Workers" working with intractable diseases update Japan's work style
NPO Ryoiku World advocates for a new concept, "RD Worker (Rare Disease Worker)," aiming to create a society where individuals with intractable and chronic illnesses can work authentically. They address "three Rares"—lack of support systems, social recognition, and flexible work options—to achieve a future where everyone who wishes to work can connect with society while valuing their individuality.
📋 Article Processing Timeline
- 📰 Published: April 1, 2026 at 19:00
- 🔍 Collected: April 1, 2026 at 10:15
- 🤖 AI Analyzed: April 22, 2026 at 03:49 (497h 33m after Collected)
Our company supports April Dream, an initiative to make April 1st a day to express dreams. This press release represents the dream of "NPO Ryoiku World."
NPO Ryoiku World (Location: Shinjuku-ku, Tokyo https://ryoiku.org/) proposes a new concept, "RD Worker (Rare Disease Worker)," referring to people who work while living with intractable or chronic diseases, and aims to make this term a common language in society. We will realize a future where all people who wish to work can connect with society while valuing their individuality.
■The background to realizing this dream: The hidden "Iceberg" and "Three Rares"
In modern society, it is not uncommon for people with intractable diseases to fall through the cracks of existing support systems. We liken this situation to an "iceberg model." Beneath the surface of diagnosed intractable diseases are many people suffering from symptoms, regardless of diagnosis.
They face the following "Three Rares (shortages)":
1. Few support systems: Many cases fall outside the scope of disability certificates, making public support difficult to access.
2. Low social recognition: Fluctuations in physical condition that are not visible from the outside are often not correctly understood by those around them.
3. Limited work options: People are forced to choose between "full-time work or resignation," unable to select flexible work styles that match their physical condition.
The employment rate for people with severe chronic intractable diseases remains at a mere 32%*, and many lose connection with society despite their desire to work.
*From the White Paper on Social Participation of People with Intractable Diseases 2021
■Our Initiatives: We are undertaking the following activities to solve these challenges.