[Policy Recommendation] Policy Recommendations in the Field of Blood Disorders: Toward the Construction of a Patient- and Person-Centered Healthcare Ecosystem (April 13, 2026)
The Health and Global Policy Institute (HGPI) has released policy recommendations aimed at creating a patient-centered healthcare ecosystem for blood disorder patients. It outlines 4 pillars and 10 proposals, including community healthcare collaboration and medical DX.
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- 📰 Published: April 15, 2026 at 21:00
- 🔍 Collected: April 15, 2026 at 12:31
- 🤖 AI Analyzed: April 19, 2026 at 08:29 (91h 58m after Collected)
The Health and Global Policy Institute (HGPI) (Secretariat: Chiyoda-ku, Tokyo; Representative Director: Ryoji Noritake), a non-profit organization, has published a policy recommendation titled "Policy Recommendations in the Field of Blood Disorders: Toward the Construction of a Patient- and Person-Centered Healthcare Ecosystem". This recommendation aims to realize a society where all patients with blood disorders can continue to live as themselves with peace of mind in the communities they are accustomed to, presenting 4 pillars and 10 proposals.
Pillar 1: Construction of a Multi-layered Medical Collaboration System
- Proposal 1-1: Clarify the division of roles between advanced specialized medical care and continuous care, and build an optimal medical delivery system according to the patient's condition.
- Proposal 1-2: Construct a system where patients can continue treatment with peace of mind through collaboration between specialized medical institutions and regional medical institutions.
- Proposal 1-3: Promote home blood transfusion and home chemotherapy to prepare an environment where patients can recuperate securely in familiar surroundings.
- Proposal 1-4: Establish a comprehensive support system for patients by promoting team medical care utilizing multi-disciplinary expertise and strengthening coordination functions.
Pillar 2: Patient-Centered Medical Communication and Support
- Proposal 2-1: Develop an environment for decision-making support so that patients can choose treatments after obtaining sufficient information.
- Proposal 2-2: Enhance consultation support systems and promote peer support to alleviate the psychological and social burden on patients.
Pillar 3: Healthcare DX and Information Sharing
- Proposal 3-1: Establish a mechanism to efficiently share medical information between specialized and regional medical institutions.
- Proposal 3-2: Develop systems allowing patients themselves to grasp their treatment progress and realize interactive information sharing with healthcare providers.
Pillar 4: Institutional Support and Research & Development
- Proposal 4-1: Maintain an institutional foundation based on the characteristics of blood disorders, ensuring the sustainability of the medical delivery system and fairness in patient burden.
- Proposal 4-2: Enhance the international competitiveness of the blood disorder field by strengthening the clinical research/trial infrastructure and building an innovation ecosystem.
We hope this recommendation will serve as a starting point for constructive discussions aimed at further promoting measures for blood disorders, and contribute to the realization of a sustainable healthcare ecosystem centered on patients and affected individuals through the collaboration of stakeholders.
View Details
■ About the Health and Global Policy Institute: https://hgpi.org/
The Health and Global Policy Institute (HGPI) is a non-profit, independent, and non-partisan private health policy think tank established in 2004. To realize citizen-driven health policies, we have brought together a wide range of stakeholders as an independent think tank and provided policy options to society. Without being bound by the stance of any specific political party or organization, we maintain independence and offer new ideas and values from a broad, forward-looking perspective to realize a fair and healthy society. Since our establishment, we have promptly presented themes that were insufficiently discussed at the time—such as women's health, cancer countermeasures, dementia, antimicrobial resistance, regenerative medicine, and global health—as policy issues. We have contributed to concrete policy advancements, such as the formation of legal systems and national strategies, and reflection in international policy discussions. Such continuous efforts have received recognition from domestic and international policymakers and international organizations, and we continue to participate in international dialogue venues as a health policy think tank originating from Japan.
We will continue to work together with everyone to present effective health policy options not only in Japan but also to the world, aiming to solve global health and medical issues.
Pillar 1: Construction of a Multi-layered Medical Collaboration System
- Proposal 1-1: Clarify the division of roles between advanced specialized medical care and continuous care, and build an optimal medical delivery system according to the patient's condition.
- Proposal 1-2: Construct a system where patients can continue treatment with peace of mind through collaboration between specialized medical institutions and regional medical institutions.
- Proposal 1-3: Promote home blood transfusion and home chemotherapy to prepare an environment where patients can recuperate securely in familiar surroundings.
- Proposal 1-4: Establish a comprehensive support system for patients by promoting team medical care utilizing multi-disciplinary expertise and strengthening coordination functions.
Pillar 2: Patient-Centered Medical Communication and Support
- Proposal 2-1: Develop an environment for decision-making support so that patients can choose treatments after obtaining sufficient information.
- Proposal 2-2: Enhance consultation support systems and promote peer support to alleviate the psychological and social burden on patients.
Pillar 3: Healthcare DX and Information Sharing
- Proposal 3-1: Establish a mechanism to efficiently share medical information between specialized and regional medical institutions.
- Proposal 3-2: Develop systems allowing patients themselves to grasp their treatment progress and realize interactive information sharing with healthcare providers.
Pillar 4: Institutional Support and Research & Development
- Proposal 4-1: Maintain an institutional foundation based on the characteristics of blood disorders, ensuring the sustainability of the medical delivery system and fairness in patient burden.
- Proposal 4-2: Enhance the international competitiveness of the blood disorder field by strengthening the clinical research/trial infrastructure and building an innovation ecosystem.
We hope this recommendation will serve as a starting point for constructive discussions aimed at further promoting measures for blood disorders, and contribute to the realization of a sustainable healthcare ecosystem centered on patients and affected individuals through the collaboration of stakeholders.
View Details
■ About the Health and Global Policy Institute: https://hgpi.org/
The Health and Global Policy Institute (HGPI) is a non-profit, independent, and non-partisan private health policy think tank established in 2004. To realize citizen-driven health policies, we have brought together a wide range of stakeholders as an independent think tank and provided policy options to society. Without being bound by the stance of any specific political party or organization, we maintain independence and offer new ideas and values from a broad, forward-looking perspective to realize a fair and healthy society. Since our establishment, we have promptly presented themes that were insufficiently discussed at the time—such as women's health, cancer countermeasures, dementia, antimicrobial resistance, regenerative medicine, and global health—as policy issues. We have contributed to concrete policy advancements, such as the formation of legal systems and national strategies, and reflection in international policy discussions. Such continuous efforts have received recognition from domestic and international policymakers and international organizations, and we continue to participate in international dialogue venues as a health policy think tank originating from Japan.
We will continue to work together with everyone to present effective health policy options not only in Japan but also to the world, aiming to solve global health and medical issues.