3rd Joint Study Session for Skin Disease Patient Groups to be Held

The Japan Psoriatic Disease Association (located in Yokohama, Kanagawa Prefecture, Representative Director: Masaki Okuse), together with co-organizing groups, will hold the '3rd Joint Study Session for Skin Disease Patient Groups' in Tokyo on Saturday, June 27, 2026. This study session, which has been held annually since the first event in 2024, has become established as a place where patient groups for different skin diseases can interact and exchange information beyond disease boundaries, thinking and learning together about common issues.

Background

Skin diseases encompass a wide range of conditions including psoriasis, atopic dermatitis, alopecia areata, hyperhidrosis, epidermolysis bullosa, and scleroderma. They cause not only physical pain but also stigma related to appearance, impacts on mental health, and limitations on employment and social participation, seriously affecting patients' overall lives.

International interest in skin diseases is also growing. In May 2025, the 78th World Health Assembly (WHA) formally adopted a resolution on 'Skin diseases as a global public health priority.' According to the Global Burden of Disease Study 2021, the number of people affected by skin diseases worldwide is approximately 4.69 billion, calling for concrete actions by each country, including promoting the participation of patient support organizations.

For details, please refer to the article on the Japan Psoriatic Disease Association website: Resolution on 'Skin diseases as a global public health priority' adopted at the World Health Assembly (WHA)

Event Overview

Name

3rd Joint Study Session for Skin Disease Patient Groups

Date and Time

Saturday, June 27, 2026, 13:00-17:00

Venue

TKP Garden City PREMIUM Tokyo Station Marunouchi Central Hall 12I

Main Content

Lectures, workshops, group presentations, participant networking session

Co-organizers

Japan Psoriasis Patients Federation, Japan Psoriatic Disease Association, JAAC Japan Alopecia Areata Communication, Alopecia Areata Patient Group, PPP Community for Pustulosis Palmaris et Plantaris Patients, Hyperhidrosis Support Group, DebRA Japan Friends of Epidermolysis Bullosa, Japan Ehlers-Danlos Syndrome Association, Scleroderma Patient Group Linkage, Japan Scleroderma Patients Association Kizuna, Japan Allergy Friends Association, Maruho Co., Ltd. (in no particular order)

Cooperation

YORIAILab General Incorporated Association

History of this Study Session

This study session began in 2024 as a place for skin disease patient groups to collaborate beyond disease boundaries and share and discuss common issues.

1st (April 2024): Held in Utsunomiya City in conjunction with the 40th Annual Meeting of the Japanese Society of Clinical Dermatologists. Activity introductions and information exchange were conducted by each patient group. Participant surveys showed 100% satisfaction and 100% desire for continued participation.

2nd (May 2025): Held in Yokohama City in conjunction with the 124th Annual Meeting of the Japanese Dermatological Association. A keynote lecture by a specialist and group activity presentations were conducted on the theme of 'Skin Diseases and Mental Health.' The record collection is available here (Maruho Co., Ltd. website).

3rd Program Overview

This study session will focus on 'Patient Experience Data (PED),' which uses patients' own experiences as data for healthcare. Following a lecture by Nobutaka Yagi, Representative Director of YORIAILab General Incorporated Association, participants will discuss specific methods for utilizing patient participation through workshops and group presentations.

Participating Groups/Individuals

Japan Psoriasis Patients Federation, Japan Psoriatic Disease Association, JAAC Japan Alopecia Areata Communication, Alopecia Areata Patient Group, PPP Community for Pustulosis Palmaris et Plantaris Patients, Hyperhidrosis Support Group, DebRA Japan Friends of Epidermolysis Bullosa, Japan Ehlers-Danlos Syndrome Association, Scleroderma Patient Group Linkage, Japan Scleroderma Patients Association Kizuna, Japan Allergy Friends Association, Dermatomyositis/Polymyositis Chat, Pemphigus/Pemphigoid Patients, Atopic Dermatitis Patients (in no particular order)

Inquiries

Japan Psoriatic Disease Association (Inspire Japan)

Phone: 050-7118-5514

Fax: 050-3527-0395

Email: info@japd.org

Web: https://japd.org/

About Japan Psoriatic Disease Association (Inspire Japan)

The Japan Psoriatic Disease Association (Inspire Japan) is an organization for psoriasis patients and their families, founded in 2017 by members of patient groups from across the country. While valuing the perspective of those affected, it disseminates accurate information about psoriasis, conducts awareness-raising activities, fosters connections among patients, and communicates the perspectives and experiences of patients and their families to society. It also collaborates with diverse stakeholders including healthcare professionals, researchers, companies, and government agencies, aiming to create a society with greater understanding of psoriasis.